Fingenious® Serves Researchers in Three Steps

What is Fingenious® service?

Fingenious® is a digital portal that functions as the one-stop window to samples and biodata of Finnish public biobanks. The service is managed by Finnish Biobank Cooperative (FINBB). Fingenious® digital portal serves researchers all over the world by allowing them to perform quick sample and data queries by browsing biobank collections and to reach all public biobanks in Finland with a centralized feasibility and access request and one contract.

What can biobank collections and services be used for?

Biobank collections and services available via Fingenious® portal are suitable for research studies that utilize samples, sample associated data (such as genome data) or sample donor recontacting services, typically combined with sample donor associated data (phenotype data). Biobank studies are conducted for the purpose of health promotion, understanding of disease mechanisms or the development of products and treatment practices for healthcare.

Fingenious® Serves Researchers in Three Steps

1

Browse biobank collections: Fingenious® Catalogue

By registering to the Fingenious® portal you can access the free Fingenious® ICD-10 Catalogue to browse hospital biobank sample collections at aggregate-level.

2

Information on sample and data availability: Fingenious® Feasibility

Register to the Fingenious® portal to obtain an official statement of sample and data availability at Finnish biobanks (hospital biobanks and nationwide THL Biobank).

3

Access samples and data: Fingenious® Access

After receiving a response to your feasibility request from the biobanks, log in into Fingenious® to fill a centralized access request.

Follow these three steps to start your research

1. Browse biobank collections: Fingenious® Catalogue

By registering to the Fingenious® portal you can access the free Fingenious® ICD-10 Catalogue to browse hospital biobank sample collections at aggregate-level. The Catalogue has the following features:

  • Sample availability searches by ICD-10-codes (currently at three-digit level), gender, sample donor recontacting possibility and genome data availability.

  • You can save your sample searches and utilize them for your feasibility request (Step 2).

  • The collections of THL Biobank are currently not in the Catalogue, you will obtain their sample and data availability by including the THL Biobank in your Fingenious® Feasibility request (Step 2).

  • Currently the catalogue does not include FFPE or other tissue samples, but these can be added to your query at the feasibility phase (Step 2).

If you have other sample types in mind, do not hesitate to describe all your needs in the feasibility request.

2. Sample and data availability: Fingenious® Feasibility

To obtain an official statement of sample and data availability fill in a centralized sample and data information request to the hospital biobanks and THL Biobank. You can also choose your biobank(s) of interest. To fill in a feasibility request:

  1. Register to Fingenious® portal

  2. Proceed to feasibility either from Catalogue or from the top navigation bar choose Requests > New request > Feasibility request > Get started

Feasibility requests have two levels:

1. Requests that are typically free-of-charge (Level 1). Included information:

  • Sample numbers / diagnosis and individual's consent to be recontacted

  • Sample drawing time in relation to diagnosis or another criteria (an exact or approximate time is provided depending on the biobank)

  • Basic inclusion and exclusion criteria for samples

  • Availability information (availability YES/NO) for variables

2. Requests that are subject to a fee (Level 2). Additional information included:

  • More detailed inclusion and exclusion criteria for sample numbers

  • Requests for more complex inclusion/exclusion criteria and variable information, where consultations with clinicians and/or more data analysis work is required

  • A price offer for the request will be provided case-by-case

Timeline for receiving your feasibility report is 2-3 weeks after the request has been submitted with the required information.

3. Access samples and data or recruit study participants via biobanks: Fingenious® Access

After receiving a response to your feasibility request, proceed to a centralized access request within Fingenious® offering an option for just one contract via FINBB. To place an access request:

  1. Log in to Fingenious® portal

  2. From the top navigation bar choose Requests > New request > Access request > Continue to request

For accessing biobank samples and data for research purposes you need to submit the following documents (FINBB will provide assistance and more detailed instructions):

  1. Study protocol

  2. Principal investigator CV

  3. Data processing impact assessment (DPIA)

  4. Record of data processing

  5. Ethical review board (ERB) approval or ethical evaluation by the principal investigator

ERB approval is required if the access request applies to Helsinki Biobank, if the study includes sample donor recontacting or is an interventional study*. Each of the other biobanks will evaluate the study in their Scientific Steering Committees.

Currently apply access to THL Biobank samples and data at THL Biobank Application Portal (forthcoming possibility to apply via Fingenious®).

Once the participating biobanks have granted a positive access decision, FINBB can coordinate the Material Transfer Agreement contracting process so that you need only one contract even if your request applies to multiple biobanks. If your access request concerned only one biobank, typically the contract is signed directly between your organization and that biobank.

To enrich the biobank collections and benefit science, you will be asked to deposit analysis data in the biobank who provided the samples. Details will be agreed in the Material Transfer Agreement. If you need an embargo period to protect your research or commercial interests, this can also be agreed in the MTA.

An average timeline for processing of a finalized access request is 4-8 weeks after all the final documents have been submitted in correct format.

*Expected to change in 2021, the information will be updated accordingly.

Any questions before proceeding?

If you have any questions before proceeding to Fingenious® portal, contact the staff at Finnish Biobank Cooperative (FINBB).