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    "result": {"data":{"contentfulArticlePage":{"blocksAfter":null,"blocksBefore":null,"body":{"raw":"{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Use Case: Digital MyBiobank Platform enables collecting new data from participants \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Problem statement\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Finding highly complex and low-volume patient populations for clinical studies can be challenging, especially when the underlying condition is undiagnosed. Currently, there is no centralized digital visibility for a large amount of such patient data. Contacting efforts often involve manual site-specific work, and there is no initial patient consent for contacting. Establishing or running a clinical study center becomes cumbersome without access to the right patients, local compliance knowledge, and clinician expertise.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Study setup and solution: What is MyBiobank?\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The Finnish Biobank Act allows Finnish biobanks to contact consented sample donors and invite them to participate in studies, including surveys. To facilitate the contacting process and to enable the execution of surveys online, a digital platform called MyBiobank has been launched by Finnish Biobank Cooperative -FINBB together with Finnish biobanks, hospital districts and the \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.finngen.fi/en\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"FinnGen\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" research project. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"MyBiobank – \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"digital platform (\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://omabiopankki.fingenious.fi/)%20is\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"https://omabiopankki.fingenious.fi/) is\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" designed to connect you with our database containing hundreds of thousands of individuals whose biospecimens, health data and preliminary consent for contacting have been gained in Finnish biobanks. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"MyBiobank can be used for collecting consents and gathering patient reported outcomes (PROs) and questionnaires. After receiving an invitation to participate in a survey, individuals can securely sign up for the MyBiobank, give new consents and to fill in the surveys. MyBiobank has been integrated with REDCap (Research Electronic Data Capture) platform and study questionnaires into which the study participants can answer to provide patient reported outcome. It is also possible to return data to participants via MyBiobank. If you would like to get access to MyBiobank digital platform, you should contact us at \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"mailto:info@fingenious.fi\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"info@fingenious.fi\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\". We can also assist you with the local legislation and connect you to our clinician network, if needed.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Outcomes\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"95% of the biobank consented individuals have given a consent to be recontacted. Biobanks can find patients based on genotype and phenotype. If genotype-based recontacting is made, it is recommended to validate the findings. The goal of MyBiobank is to provide a versatile and secure online platform for easy contacting of biobank sample donors and to facilitate electronic communication between donors, biobanks and researchers. MyBiobank platform has been used for the first time in a \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.finngen.fi/en/citizens/recall-study\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"FinnGen pilot study\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\", in which \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.auria.fi/biopankki/en/\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Auria\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\", \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.helsinginbiopankki.fi/en/front-page\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Helsinki\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" and \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.tays.fi/en-US/Research_and_development/Finnish_Clinical_Biobank_Tampere\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Tampere\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" Biobanks invited 6,000 FinnGen sample donors to take part in surveys online via MyBiobank. MyBiobank platform was also used in the \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://site.fingenious.fi/en/articles/generoos-the-role-of-genetics-in-weight-loss-research\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Generoos study \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"where participation rate varied between 20-30%. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"“Future patient-driven studies are even more user friendly, digital and cost-effective in nature. We are excited to provide MyBiobank service for biomedical research programs benefiting citizens, patients, healthcare system and researchers. Finland offers a unique opportunity to enrol people in clinical trials by e.g. genotype or polygenic scores” says \",\"marks\":[],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"Marco Hautalahti\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\", CEO of Finnish Biobank Cooperative – FINBB.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Fingenious®,\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\" operated by Finnish Biobank Cooperative – FINBB, is a gateway to Finnish biobanks and biomedical research that offers researchers easy access to high-quality public biobank samples, data, cohorts, and recruitable study participants. FINBB aims to enhance the competitiveness of Finnish health and biomedical research by providing researchers with centralized access to collections and services of the Finnish biobanks and their background organizations. FINBB's activities create value for its members and owners by providing services at the national level. FINBB is a cooperative owned by five wellbeing services counties, HUS, six largest universities in Finland, and the Finnish Institute for Health and Welfare (THL). FINBB has eight member biobanks.\",\"marks\":[],\"data\":{}}]}]}","references":[]},"fields":{"route":"/articles/digital-mybiobank-platform-enables-collecting-new-data"},"fullTitle":"Digital MyBiobank Platform enables collecting new data from participants","metaDescription":{"metaDescription":"The Finnish Biobank Act allows Finnish biobanks to contact consented sample donors and invite them to participate in studies, including surveys. To facilitate the contacting process and to enable the execution of surveys online, a digital platform called MyBiobank has been launched by Finnish Biobank Cooperative -FINBB together with Finnish biobanks, hospital districts and the FinnGen research project.  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